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Arizona Legislation House Bill #2364 *** HISTORIC MARK *** First U.S. Legislation Passed Specific to EGID |
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ARIZONA STATE CAPITOL PHOENIX, ARIZONA |
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In APRIL 2006 Arizona Governor Janet Napolitano Signed House Bill # 2364 into LAW. This Bill Mandates Arizona Insurance Companies to COVER Hypo--Allergenic Medical Food Formula for Patients diagnosed with Eosinophilic Gastrointestinal Disorders. This Bill is a Historic LEAP forward for the EGID Cause as it is the FIRST piece of Legislation-- ever passed-- that is Specific to this Rare, New disease. Generous Limits come along with this bill--Insurance must cover a Minimum of 75% of the annual cost of Medical Food Formula for EGID , maxing at $20,000 per year. There are NO AGE LIMITS OR Method of Administering Formula Restrictions attached to this Bill. It becomes Effective 1/1/07. A VERY SPECIAL THANK YOU TO Former STATE REPRESENTATIVE STEVE HUFFMAN |
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Michelle & Denise |
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We made a lot of FRIENDS at the Capitol. We were very impressed with our State Legislature. |
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We made Memories never to be forgotten. |
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A SPECIAL Friend That we made on this Journey was Jo Grant, Admin Coordinator Tucson Legislative Office. She became "OUR ANGEL" guiding & sheparding us at every step. THANK YOU Jo for all of your Kindness, Compassion, Expertise & Especially Your Friendship. |
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CONTACT US: Eosinophilictucson@yahoo.com |
****THE PROCESS**** Having Fought the Exhausting Insurance Fight & Having Felt the Devastating Financial impact of being DENIED INSURANCE COVERAGE for Medical Food Formula to treat our Son's Disease.... We decided to SPEARHEAD Legislation to change this...... It was a 6 month Legislative Process that took A LOT of Hours, Hard Work, Travel, Research & Preparation, Emails, Phone Calls, Support of Family & Friends, Meetings, Appointments, Testifying in House & Senate Hearings AND Most of all..... Prayer. This was a LIFE CHANGING Experience for us as we navigated the unfamiliar world of our State Legislature. Neither of us come from a political background. We are 2 mothers...fueled by the Love we have for Our Children...Driven by our Passion to help others who suffer from this very difficult Disease..... ~We Gratefully THANK~ Working on this Legislation took it's toll. We would like to THANK ALL of THOSE who HELPED Make it Possible. First, we Thank GOD...who guided Us & this BILL the whole way through. It really was Divinely Led. Our Husbands, Rocco & Vince ..... Without their HELP, SUPPORT & Keeping the Home Fires Burning we could not have done it. We Love You. Our Children who sacrificed time without mom as we worked on the bill..... Our Families & Friends for all of the Emails, Calls, Prayers & Support.... Of course Steve Huffman, Jo Grant & all at the State Capitol who helped our bill.... Our Support Group for all of their Help & Support. A Special Hug , Acknowledgement & Thank You to Christina , Grace , Julie , Lori , Shelly & Valerie for your work on this Bill. Dr Hobeich, Dr Markowitz, Dr Manthei, APFED, CURED & the EGID Community for their Support & Contributions. Working together we learned that with hard work, dedication, laughter, perseverance & faith.... God really will accomplish "The Improbable & The Impossible." We encourage YOU to take on this Legislative Fight in Your State. |
Representative HUFFMAN Sponsored our Legislation and Worked Tirelessly on the Bill. Insurance Mandates are very difficult to pass and we will always be grateful for the dedication & experience that he provided. Truly ---Rep Huffman EPITOMIZES how a State Official should Represent the People. Having SPEARHEADED this Legislation, We worked hard with Steve & his staff to move this bill through the process. We experienced first hand WHO THIS POLITICIAN IS . First and foremost, he is GENUINE, HONEST, A FAMILY MAN WHO CARES ABOUT ARIZONA FAMILIES, EXPERIENCED, WELL RESPECTED, LOYAL & HARD WORKING. Steve believed in the Injustice of Medical Food Treatment being DENIED to families and he FOUGHT for our Children ! We will ALWAYS Be Grateful ! |
Click to Link to Official Bill Language |
Click to Link to Official Bill Overview |